Sun-kissed skin
tired babies
play set up
windows open...
today was a good day!
*Trying to figure out what to take to the hospital for Baby Girl and fam. If you have any experience with this please give your tips. I also want to bring things that will make the stay a little easier (ie. pictures, signs to put on or around her bed). Would love some opinions!
I started this blog to journal about our family's journey through our daughter's diagnosis of Craniosynostosis.
Saturday, May 14, 2011
Friday, May 13, 2011
Let the count down begin...
We are a little over a week away from Baby Girl's surgery. Life has been pretty interesting. She started her procrit shots two weeks ago. She has been full of ENERGY and HUNGRY! She is getting up at night about every 2 hours and wants to eat all the time. I've been a walking zombie but happy because she is gaining weight and getting stronger. She really is a ball of energy.
Emotions are running a little high. I really think its the waiting and knowing what is about to come. We are spending as much time as possible holding and playing with our beautiful, happy little girl.
*Yes, we finally can play outside! Look how big she is getting!!
Emotions are running a little high. I really think its the waiting and knowing what is about to come. We are spending as much time as possible holding and playing with our beautiful, happy little girl.
Monday, May 9, 2011
Oh my Little E
So surgery came and went. Do you want to know the two hardest moments...
1. Watching Scott hand over our Little E to the nurse in scrubs and mask on her face and hearing her scream all the way back until they were able to put a mask on her face to put her to sleep. Knowing how scared the little munchkin was and not being able to do a thing about it.
2. Seeing a sleepy, out of it little girl who was just a little swollen and a touch of blood on her face be brought back to our room after her surgery. So vulnerable so helpless.
Honestly, I think we needed to experience this so that we could prepare ourselves for Baby Girl's much more intense, risky and scary surgery in a few weeks.
My faith is being stretched and my heart feels like it might rip sometimes... I know its just being taught how to trust in Heavenly Father and His plan. My babies are his babies. He loves them more than I do. He will do what needs to be done. He will protect them the way they need to be protected.
P.S.
Little E did great. She had a few moments of not wanting ice cream, popsicles or pudding and only want SALAD. She was down for a few days but after switching her medicine to tylenol/motrin from the narcotic she was right back to herself. Now she sounds a little bit like a really loud cartoon character. The Dr. said she won the largest tonsils/adenoids of the day.
1. Watching Scott hand over our Little E to the nurse in scrubs and mask on her face and hearing her scream all the way back until they were able to put a mask on her face to put her to sleep. Knowing how scared the little munchkin was and not being able to do a thing about it.
2. Seeing a sleepy, out of it little girl who was just a little swollen and a touch of blood on her face be brought back to our room after her surgery. So vulnerable so helpless.
Honestly, I think we needed to experience this so that we could prepare ourselves for Baby Girl's much more intense, risky and scary surgery in a few weeks.
My faith is being stretched and my heart feels like it might rip sometimes... I know its just being taught how to trust in Heavenly Father and His plan. My babies are his babies. He loves them more than I do. He will do what needs to be done. He will protect them the way they need to be protected.
P.S.
Little E did great. She had a few moments of not wanting ice cream, popsicles or pudding and only want SALAD. She was down for a few days but after switching her medicine to tylenol/motrin from the narcotic she was right back to herself. Now she sounds a little bit like a really loud cartoon character. The Dr. said she won the largest tonsils/adenoids of the day.
*Isn't this wheelchair the cutest thing you've ever seen
Wednesday, April 27, 2011
Tonsils and Adenoids, Oh My!!
Our Little E... it seems that every so often she has a health issue that goes undetected by the pediatrician and is somehow discovered by Mom or Dad (this is the "straw that broke the camel's back" we will be looking for a new pediatrician). Our Little E snored and when I say snored I mean it sounded like a freight train was going through her room. Thank goodness Miss G sleeps through anything and wasn't disturbed by this. I knew her tonsils were on the big side but always thought a child had to have strep throat a lot before having them taken out. We went to the ENT last Friday because she was complaining when she ate certain food that it hurt her throat and she was snoring. I really just wanted to see what they would say... maybe keep an eye on them or maybe just maybe not to worry it all looks normal.
The ENT looked in her ears, nose and throat... hahaha of course and did the all too telling, clearing of the throat. He asked does she snore, does she have sleep apnea, has she had strep throat a lot??
My answers 1. Yes 2. Not a clue. She is a light sleeper. 3. Never ever had strep throat.
He told me that they rate the size of tonsils on a scale from 0 to 4. 0 = No Tonsils and 4 = Tonsils so large they touch. Yes, I'm sure you guessed it Little E's were a whopping 4. He said they were so large they were touching and obstructing her airway. He also said that they have bacteria all over them. He said they take tonsils out for one of two reasons:
1. 4-6 Strep throats a year
or
2. Obstruction
He said that she had both issues. Even though she hasn't had strep throat the amount of bacteria on the tonsils qualified her for both reasons. The ENT said sometimes you get a very stoic child who doesn't complain but they are IN PAIN. Not something Mothers want to hear. The poor baby was hurting and I didn't even know.
So she is heading in for surgery tomorrow. What's the saying... When it rains it pours. Isn't this a GREAT way to start out our quarantine for Baby Girl's surgery.
To make the trip a little fun, we bought her all the yummy goodies she gets to eat and a cute pair of pjs that comes with a tutu. She was quite excited. Miss G was a little envious.
The ENT looked in her ears, nose and throat... hahaha of course and did the all too telling, clearing of the throat. He asked does she snore, does she have sleep apnea, has she had strep throat a lot??
My answers 1. Yes 2. Not a clue. She is a light sleeper. 3. Never ever had strep throat.
He told me that they rate the size of tonsils on a scale from 0 to 4. 0 = No Tonsils and 4 = Tonsils so large they touch. Yes, I'm sure you guessed it Little E's were a whopping 4. He said they were so large they were touching and obstructing her airway. He also said that they have bacteria all over them. He said they take tonsils out for one of two reasons:
1. 4-6 Strep throats a year
or
2. Obstruction
He said that she had both issues. Even though she hasn't had strep throat the amount of bacteria on the tonsils qualified her for both reasons. The ENT said sometimes you get a very stoic child who doesn't complain but they are IN PAIN. Not something Mothers want to hear. The poor baby was hurting and I didn't even know.
So she is heading in for surgery tomorrow. What's the saying... When it rains it pours. Isn't this a GREAT way to start out our quarantine for Baby Girl's surgery.
To make the trip a little fun, we bought her all the yummy goodies she gets to eat and a cute pair of pjs that comes with a tutu. She was quite excited. Miss G was a little envious.
Monday, April 25, 2011
Sunday, April 24, 2011
He has Risen...
and lifts me daily.
Easter was WONDERFUL!
The Easter Bunny came and visited the girls.
Miss G was up around 6am... I LOVE that sleepy face!!
They fill my life with such sweet joy!
We have started our "quarantine" just to find out that Little E will need to have surgery this week to have her tonsils and adenoids taken out. Is this our new normal? Sometimes I feel like I'm looking around and don't recognize my life anymore. I will give more details tomorrow. Our poor Little E... it just breaks my heart.
Easter was WONDERFUL!
The Easter Bunny came and visited the girls.
Miss G was up around 6am... I LOVE that sleepy face!!
And this face...
And we can't forget this Little ONE!!
They fill my life with such sweet joy!
We have started our "quarantine" just to find out that Little E will need to have surgery this week to have her tonsils and adenoids taken out. Is this our new normal? Sometimes I feel like I'm looking around and don't recognize my life anymore. I will give more details tomorrow. Our poor Little E... it just breaks my heart.
Tuesday, April 19, 2011
My heart is full!
This video is why my heart is so full.
We will be praying for angels to come to our Baby Girl too!
P.S. I know that I haven't written very much lately. I promise I am back and will be much better at updating! We are, now, starting our quarantine. Baby Girl starts her procrit shots on Monday. This is really happening... not sure how I feel about that.
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