Little E (with arms crossed and head to the side): "I don't want nobody to shave Baby Girl's head."
I agree.
I couldn't resist posting this one. hahaha.
I started this blog to journal about our family's journey through our daughter's diagnosis of Craniosynostosis.
Friday, May 20, 2011
Thursday, May 19, 2011
Faith
We will be fasting for our Baby Girl before her surgery. We would love for everyone who would like to participate to join the fast.
The fast begins Sunday (May 22nd) at 4:00pm and ends Monday (May 23rd) at 1:00pm.
We are incredibly grateful to everyone who has prayed and fasted in behalf of our little one. We go into this knowing that Heavenly Father loves us and is watching over our baby. We will be updating as much as possible.
Mark 9:29 And he said unto them, This kind can come forth by nothing, but by prayer and fasting.
The fast begins Sunday (May 22nd) at 4:00pm and ends Monday (May 23rd) at 1:00pm.
We are incredibly grateful to everyone who has prayed and fasted in behalf of our little one. We go into this knowing that Heavenly Father loves us and is watching over our baby. We will be updating as much as possible.
Mark 9:29 And he said unto them, This kind can come forth by nothing, but by prayer and fasting.
Tuesday, May 17, 2011
Day to Day
Baby Girl has started to whimper any time she sees a nurse... it is so sad. When she receives her Procrit shot each Monday the nurse has to prick her heel to take a blood draw. The blood draw is incredibly difficult on a 5 month old. Yesterday she got her heel pricked twice and then the nurse had to fill a vile with blood to check her red blood cell count. The blood clotted so quickly that they couldn't run the test on it by the time the viles reached the lab.
So this morning we had to go into a lab to have her blood taken with a needle out of a vein in her arm. When the nurse said hello to her, she started to whimper and stick her bottom lip out. It was pitiful. It should be interesting when she is taken back for surgery.
Even though her blood has been clotting fast she still needed another Procrit shot. To be honest the blood draw is harder than the shot. By the time she was done she was very tired. I'm glad we are done with this part.
So this morning we had to go into a lab to have her blood taken with a needle out of a vein in her arm. When the nurse said hello to her, she started to whimper and stick her bottom lip out. It was pitiful. It should be interesting when she is taken back for surgery.
Even though her blood has been clotting fast she still needed another Procrit shot. To be honest the blood draw is harder than the shot. By the time she was done she was very tired. I'm glad we are done with this part.
* Sorry, but this picture just made me laugh. This captures our true Miss G. The girls spend all day every day dressing up. Just had to show a picture of our day to day lives with these sweet, silly girls.
Sunday, May 15, 2011
Look what I came across...
*Little E when she moved to a big girl's bed.
*Miss G with her missing tooth.
I came across these pictures in our picture file. Its amazing how much kids can change in just a couple of years. I sure do love these little girls.
Saturday, May 14, 2011
Saturdays...
Sun-kissed skin
tired babies
play set up
windows open...
today was a good day!
*Trying to figure out what to take to the hospital for Baby Girl and fam. If you have any experience with this please give your tips. I also want to bring things that will make the stay a little easier (ie. pictures, signs to put on or around her bed). Would love some opinions!
tired babies
play set up
windows open...
today was a good day!
*Trying to figure out what to take to the hospital for Baby Girl and fam. If you have any experience with this please give your tips. I also want to bring things that will make the stay a little easier (ie. pictures, signs to put on or around her bed). Would love some opinions!
Friday, May 13, 2011
Let the count down begin...
We are a little over a week away from Baby Girl's surgery. Life has been pretty interesting. She started her procrit shots two weeks ago. She has been full of ENERGY and HUNGRY! She is getting up at night about every 2 hours and wants to eat all the time. I've been a walking zombie but happy because she is gaining weight and getting stronger. She really is a ball of energy.
Emotions are running a little high. I really think its the waiting and knowing what is about to come. We are spending as much time as possible holding and playing with our beautiful, happy little girl.
*Yes, we finally can play outside! Look how big she is getting!!
Emotions are running a little high. I really think its the waiting and knowing what is about to come. We are spending as much time as possible holding and playing with our beautiful, happy little girl.
Monday, May 9, 2011
Oh my Little E
So surgery came and went. Do you want to know the two hardest moments...
1. Watching Scott hand over our Little E to the nurse in scrubs and mask on her face and hearing her scream all the way back until they were able to put a mask on her face to put her to sleep. Knowing how scared the little munchkin was and not being able to do a thing about it.
2. Seeing a sleepy, out of it little girl who was just a little swollen and a touch of blood on her face be brought back to our room after her surgery. So vulnerable so helpless.
Honestly, I think we needed to experience this so that we could prepare ourselves for Baby Girl's much more intense, risky and scary surgery in a few weeks.
My faith is being stretched and my heart feels like it might rip sometimes... I know its just being taught how to trust in Heavenly Father and His plan. My babies are his babies. He loves them more than I do. He will do what needs to be done. He will protect them the way they need to be protected.
P.S.
Little E did great. She had a few moments of not wanting ice cream, popsicles or pudding and only want SALAD. She was down for a few days but after switching her medicine to tylenol/motrin from the narcotic she was right back to herself. Now she sounds a little bit like a really loud cartoon character. The Dr. said she won the largest tonsils/adenoids of the day.
1. Watching Scott hand over our Little E to the nurse in scrubs and mask on her face and hearing her scream all the way back until they were able to put a mask on her face to put her to sleep. Knowing how scared the little munchkin was and not being able to do a thing about it.
2. Seeing a sleepy, out of it little girl who was just a little swollen and a touch of blood on her face be brought back to our room after her surgery. So vulnerable so helpless.
Honestly, I think we needed to experience this so that we could prepare ourselves for Baby Girl's much more intense, risky and scary surgery in a few weeks.
My faith is being stretched and my heart feels like it might rip sometimes... I know its just being taught how to trust in Heavenly Father and His plan. My babies are his babies. He loves them more than I do. He will do what needs to be done. He will protect them the way they need to be protected.
P.S.
Little E did great. She had a few moments of not wanting ice cream, popsicles or pudding and only want SALAD. She was down for a few days but after switching her medicine to tylenol/motrin from the narcotic she was right back to herself. Now she sounds a little bit like a really loud cartoon character. The Dr. said she won the largest tonsils/adenoids of the day.
*Isn't this wheelchair the cutest thing you've ever seen
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