Wednesday, February 16, 2011

Meeting with the Pediatrician

I called the Pediatrician's office and made an appointment for the next day. As I walked into the pediatrician's office there was a much different feeling then I have ever felt. The nurse was kinder and quickly took measurements of her head, weighed her and left to get the Dr. As Dr. P, our pediatrician, walked in he calmly walked over to Baby Girl and felt her head, looked at measurements and then cleared his throat. He said that we would need to do a CT SCAN that she could quite possibly have sagittal craniosynostosis. If left untreated, her head would grow front to back but not side to side because the sides had fused. I started to cry. I knew this is what she had. I already had done all the research and understood what this meant for our little girl. Dr. P looked over at me and said "No tears. Let's take this one step at a time." I wiped the tears away and agreed.

We left the office and started to drive home when I got a call from the Dr. office. They got us in for a CT SCAN that day and we were to go straight to the hospital.

Honestly, I felt like I was in a daze. As I sat down and started to sign all the paperwork, I couldn't believe that I was here with my 3 week old baby who was about to have a CT SCAN of her little head. Because of the time of year, we were keeping her at home as much as possible and here I was with her in the hospital. Agh, so much for avoiding germs. I was able to lay her on the table and help the tech wrap her in blankets and strap her to the table. Luckily the little angel was asleep and didn't move at all. The tech then sent me out in the hallway to stand by the door. Scott and the girls were waiting in a room they had put us in earlier watching TV (thank goodness for Disney). As I stood there people kept walking in and out of the room smiling and patting me on my shoulder telling me everything is going to be okay. There is no telling the expression on my face. As quickly as they took her in she was done. Scott and I both thought, "Okay, this wasn't too bad... We can handle this..."

I got a phone call that evening from the Pediatrician and his nurse, "her skull has started to fuse. She has Craniosynostosis and we are sending you to a specialist this week." I already knew that she did. It wasn't much of a surprise. I started to realize that the dull ache in the pit of my stomach wasn't going to leave for quite a while. This is when I bowed my head to thank Heavenly Father for being aware of us and sending the right people to help Baby Girl.  And of course prayed that this wasn't really happening to us even though I was well aware we were already right in the middle of this bad dream.


  1. Thanks for creating this blog. Once again, I am so glad that you felt that prompting. May our Heavenly Father continue to be with your family during this journey. I miss you and love you!


  2. I Love your blog. Continue listening to that still small voice. You and your family are in our prayers, especially Baby Girl. XOXOXOXO We miss you and love you.

  3. We miss having you in our lives every day and of course, we are saddened by the news that your darling Baby Girl is not well. We can only imagine how difficult this has been and how much courage it must take to push ahead. I believe in my heart that Baby Girl is very lucky to have you and Scott for parents and to have your extended family for support. Always know that we have you in our thoughts and prayers daily.


    Bob & Jane Fitzpatrick